In spring 2025, HQBC hosted a focus group of patient partners to reflect on their
experiences and suggest improvements. While recognizing we have made some
progress since the previous Pulse Check Survey in December 2023 — such as a more
user-friendly website and streamlined onboarding — participants also highlighted
ongoing challenges, including misalignment of opportunities with patient partner
interests, complex application processes and the need for clearer engagement
pathways. The discussion centred around what matters most to patient partners, what
they value in their PVN experience and ideas for cost-neutral capacity building. Their
input surfaced key themes and suggestions to enhance inclusivity, simplify processes
and strengthen community connections.